Friday, January 27, 2012

Poor Baby!

On the 12th of Decemeber I took Will to a pediatric pulmonologist to have his neck looked at.  It's a very long story but since birth, Will, hyperextended his neck WAY back!  At first we just thought he was just used to being crammed inside of me but after about 4 weeks we started to be a little concerned about it.  When asking the pediatrician about it he recommended that we see a pediatric pulmonolgist because he thought the reason he was hyperextending was because he had a week trachea causing an airway issue.  They thought he had Trachea Malacia.  Google it.  I did and then I was worried for my little baby.  After a visit to the specialist they ordered several test and wanted us to come back January 25th.  About a week after this appointment Will started having major breathing issues. We took him to our pediatrician on a Saturday morning and he was diagnosed with brochiolitis.  He was weezing, having trouble breathing, and he was just plain miserable.  Poor Will!  We rented a nebulizer and had to do breathing treatments every 2-3 hours.  I have a new found respect for parents of chronically ill children.  The round of clock care was exhausting and so stressful.  You don't care about anything but your baby being well. 
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 Thankfully my mom (retired nurse and exceptional Grams) would come and help me give Will his treatments.  Poor Zachary cried the first couple times we did this to Will because he was so scared and worried for his brother.  We were thankful that Will is SUCH A GOOD baby because it really did not bother him.   He was so good even when he was SO sick. 

Unfortunately the weeks before, during, and after Christmas were busy taking care of this sweet baby boy.  Not exactly the 1st Christmas we imagined but we were so thankful that we were not in the hospital.  On January 9th we stopped the treatments and the pediatrician said he was 100% better.  Back to the hyperextended neck issue.

See how Will held his head....It was always hyperextended back. Let me say that when he was born he was born SUNNY SIDE up.  He was stuck in the birth canal for over 3 hours with his neck bent back.  In hindsight he should have been a C-section baby but at the time he came out after a very hard labor. 
  Will saw the pediatric pulmonologist yesterday afternoon for a follow up of his hyperextended neck. Dr. Carlise reviewed all of the tests (Barium swallow, oxygen/sleep study, blood gases, and chest Xray) that we had done in December. Dr. Carlise and his nurse cannot explain Will's current condition but he is 100% healthy.
My mom and I really think that when Will saw Dr. Carlise in December that the doctor did some sort of manipulation or streching of his neck when he was doing his physical exam. Dr. Carlise said that what he did would not have "fixed" Will's condiiton. He said that he thinks there was "someone higher up" that fixed Will. Prayers have been answered! Both Dr. Carlise told us in a very candid conversation that when they first took a look at Will back in December they knew something serious was wrong with him. Today they saw no signs of that at all. So much so that we are released from his office and no further testing is required. This means NO trachea Malicia, NO cerebral palsy, NO torta collis!
The ONLY explaination was that God heard our prayers and healed Will. We are praising God for his full recovery!

1 comment:

Emily said...

This is just awesome Hil! I never knew that all this was going on. Praise God!!